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HERITAGE ALLIANCE · DATA & KNOWLEDGE

Heritage Alliance Data Portal

Explore published catalogue information and a reference approach to responsible, federated health data research. Dataset access is always separate from catalogue visibility.

Explore the sections below

Federated Architecture

Adapted from the EpiScientia IHDP reference design. The following describes intended architecture and principles; operational Heritage integrations remain to be verified.

Data remains at source

A federated design allows approved analysis across local nodes while maintaining the source institution’s stewardship of individual records.

Common data model

OMOP CDM and controlled vocabularies provide a shared structure and meaning for harmonised research data.

Open ETL pipelines

Documented extract, transform and load processes can map local source systems into a common research structure.

Privacy by design

Minimise data movement and consider consent, permissions, disclosure risk and applicable law throughout the design.

Explore the architecture Browse the catalogue New onboarding data partners readiness assessment

Network Topology

Illustrative local nodes connect through a central query-processing hub. Numbered labels are placeholders, not evidence of live country integrations.

Local Data Nodes

Country 1

NPHI Node

Country 2

NPHI Node

Country 3

NPHI Node

Country 4

NPHI Node

Country 5

NPHI Node

Central Query Processing Hub

OMOP CDM · Federated Analytics · No Patient Data Storage

Analytics

Dashboards & Reports

Research

Publications & Studies

Policy

Briefs & Guidance

Platform Components

The source design brings six complementary capabilities together.

Federated Data Network

Institutional nodes support locally governed participation in approved collaborative analysis.

OMOP CDM & Vocabularies

Common structures and concept mappings make data easier to interpret consistently.

ETL Pipelines

Repeatable transformations document how source data becomes research-ready.

Analytics & Modelling

Research tools can support descriptive analysis, modelling and decision support.

Governance & Ethics

Agreements, review processes and data-owner decisions guide acceptable use.

Open Data Catalogue

Metadata describes available resources without granting access to the underlying data.

Supported Data Sources

These are source-system categories described by the reference design, not a list of confirmed Heritage connections.

Electronic health records

Clinical records from compatible local health systems.

Disease registries

Structured records supporting disease-specific research.

Programme-specific data

Information collected for public health programmes.

Population surveys

Survey indicators and documented population estimates.

Laboratory information systems

Laboratory results and surveillance information.

Outbreak investigations

Data collected under the permissions of an outbreak investigation.

Data Governance

Responsible use requires both technical safeguards and institutional decisions.

Privacy-preserving analysis

Assess identifiability and disclosure risks before releasing outputs.

Applicable legal requirements

Review GDPR and relevant national law where they apply; no compliance certification is implied.

Ethical oversight

Confirm the responsible institution, required ethical approvals and data-owner permission for each project.

Governance & Protection

Explore the Data Portal

Follow the workflow from design and discovery to permission and attribution.

Architecture diagram